Pediatric Cancer Resources

The Childhood Brain Tumor Foundation
http://www.childhoodbraintumor.org
1-877-217-4166
20312 Watkins Meadow Drive
Germantown, MD 20876

The Childhood Brain Tumor Foundation provides information about brain tumors, cancer research and survivorship for the families of children with brain tumors. The foundation publishes articles about brain tumors on its website and in a newsletter.

 

Children’s Cause for Cancer Advocacy
http://www.childrenscause.org
1-301-562-2765
1010 Wayne Ave., Suite 770
Silver Spring, MD 20910

The Children’s Cause for Cancer Advocacy provides educational materials such as information on clinical trials and news about biomedical research funding and legislation. In addition to its educational resources, the organization publishes an e-mail newsletter.

Children’s Neuroblastoma Cancer Foundation
http://www.cncfhope.org
1-866-671-2623
360 W. Schick Rd., Suite 23, # 211
Bloomingdale, IL 60108

The Children’s Neuroblastoma Cancer Foundation (CNCF) is a non-profit national health organization committed to finding a cure for neuroblastoma through research, education, awareness and advocacy. CNCF initiatives educate the public about a disease dramatically lacking in awareness and funding. It serves as an advocate for families, as well as a liaison between health care providers and families for informative resources and grants for researchers.

 

CureSearch
http://www.curesearch.org
1-800-458-6223
4600 East-West Highway, Suite 600
Bethesda, MD 20814-3457

CureSearch’s mission is to cure and prevent childhood and adolescent cancer through scientific discovery and compassionate care. The organization’s website provides information about treatment and care for pediatric cancer patients. It includes special webpages for parents and patients.

 

The Hepatoblastoma Network
http://hepatoblastoma.mditv.com
1-402-813-1342
240 N Broadway, Suite #213
Portland, OR 97227

The Hepatoblastoma Network is a support community for parents of children with the rare childhood liver cancer. In the “Stories of Hope” section, parents can share their child’s story with the community and offer support to other families. The website provides comprehensive information on hepatoblastoma, including information on treatments and symptoms, a Hepatoblastoma Wiki, and a detailed look at the anatomy of the liver. The multimedia section offers video and audio interviews with leading medical professionals and researchers around the United States.

 

The Pediatric Brain Tumor Foundation of the United States
http://www.pbtfus.org
1-800-253-6530
302 Ridgefield Court
Asheville, NC 28806

The Pediatric Brain Tumor Foundation of the United States (PBTFUS) offers educational materials for parents of children with brain tumors, including brochures and an internet conference series. The organization also raises money for pediatric brain tumor research, awareness and detection.

 

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